Emo the Emotional Elf update #author #christmas #elves #emotions #autism #anxiety #mentalhealth

Hi how has your day been?

Work today with Hayley was good, took her shopping for things she needs and for a treat to Starbucks, we brought Emo with us.

Felt very empowered to actually approach shops and introduce myself as a new author, trying to find out who the best person there to show the book to

Little deflated when was told to contact head office, these are things I think for new authors are hard unless your really great at selling yourself as well as your book. But at least I stepped out of the comfort zone behind a keyboard.

I have a lot of belief in the book and the work I have put into the finished product. But it is such a specific book in alot of ways, so seeing it in person rather than a picture of the cover and back page online might not do it the justice it deserves.

I can say that for my family it really did help and do what it was supost to. And while everyone who has books out that cover the same thing as mine, and I know many of them are AWSOME because I have read them. I like to here how others stories are simpler but yet so very different.

I have been researching others that are in the area of children’s self help, awareness books and elf or christmas books, but Thier are none in the style in which Emo the Emotional Elf has been written. So it isn’t something I could compare to another if that makes Sence.

Part of marketing a book is looking where it slots in what your audience is.

I don’t want it put into brackets of a specific audience but to be enjoyed by all different personalities it is a book about enclution after all

Maybe it is just a book that is made to stand alone in its own little way. A book to draw people In and to help them open up and share thier stories.

With all the connections friends and people I have been speaking to over the last 2 years it has certainly shown that that does happen.

Non fiction books the most are about the person or people in real life, it is full of the personalities of the writer and of the others in thier family or life or work. This is vastly true about this book.

You know I sometimes share selfies not for comments but because I want to show the person behind the book, the author, the person behind the keyboard updates. I am trying to find the right words for video updates and a more personal approach.

But sometimes I feel that I am not taken seriously as a person because of that.

I mean I have had to tell someone to stop making rude remarks about how I look hot, it really is inappropriate especially as they have not once asked about my work or my book, they called me baby I pointed out my Name is Faye

and I have a brain. I guess I don’t have such a limited vocabulary as I thought. Thier is more to me than what a picture can ever show or a video, I am aย  very deep thinker I love science, engineering, art and opera, creative dance, medical mystery and cars. History and investigations. I love children because they see you as a person first they see you kindness your heart, they see so many things.

I get frustrated easily when I am passionate about a subject, just because it is something I feel, not just something I see or here.

That’s all for today

All my love Fayeย IMG_20181003_110853548

 

 

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Emo the Emotional Elf update. #author #christmas #elves #emotions #autism #anxiety #mentalhealth The meaning of anxiety in our family and things to watch for.

Hi all, hope your day has been kind to you and someone or something gave you a reason to smile,๐Ÿ˜€

Ours has been very good, Niki was selected to be student rep she loves this and is talking about how it will help to have that on her resume. She had her first GCSE maths lesson today and she said it was ok. This is the subject that she has missed out on the most always used to be one of her strongest before diagnosis.

Jake had his ear crystal test done at physio today and we now have more excersize’s to do as well as a new one for the dizziness, we have to perform the Epley manouver 3*a day.

Not to hard for him to do with help. Jake’s hips need more work to build up so hopefully his inturned foot and leg will slowly stop happening once this area gets stronger, that could me less falls in the long run.

I got to sit and have lunch with my hubby Nik and watch a movie so that was relaxing trying to keep my mind calm and centered so I can remember what I need to say a Ehcp meeting Thursday.

Today I want to share a little of how my kids anxiety can present itself,

When we talk about anxiety and the panic attacks which can be hard on them both mentally and physically,

We often forget about talking about the quiter symptoms that others might not actually pick up as anxiety.

The staring into space, the clenching of hands, the hair pulling Niki used to pull the front of her hair out this we didn’t know was cause by her anxiety before but as we learnt more about her anxiety we come to look back on quite, tell tale signs we may have missed before Niki has the unfortunate extra diagnosis of tourettes which really does highten during the anxiety. She had an inability to talk when they were very bad, they both can’t tollorate noise at time or being spoken to because they are trying to keep Thier control.

Niki gets really hunger at high anxiety moments so having something sugary near by helps the feeling she gets in her tummy, braking pencils , pencils in the leg was one thing Jake did, not having anyone touch you during a panic is another thing. The inability to follow instruction is not ignoring a request but simply that they are metaphorically speaking glued to the spot. Hiding in tight spaces, being loud to drown out notice they feel intolerant to at the time, fast heart beats, sweating fainting in ability to catch a breath, self harmna big worry during these times we kind of talked openly with the children about this because not talking about it is pretty dangerous. For Niki we brought washable markers, and much to everyone’s dismay t that being on her arms it saved her from perminant scars, I don’t regret giving her an alternative how ever many times we were brought up how she looked.

They both have a need of tight spaces Jake climbed in to boot of car whilst his school anxiety was bad, or the foot well of the car, under a table .

Niki it was bins or cupboards or toilets, being the only girl in the communication unit ment she was feeling safest there they both message me when it is bad and could communicate Thier needs to Thier support workers or teachers.

anxiety is wripping paper in to tiny pieces, it’s needing sensory input sometimes and not wanting it others.

It is wanting to get out but not moving . It’s the shakes, the emotions chopping and changing it can last minutes days,weeks or months or week without,

My kids are able to use techniques now but the anxiety is always there,

It’s worrying something bad is going to happen,or generally not feeling safe, it is seeing someone you have argued with or someone who has hurt you .

Jake couldn’t stop washing his hands at one point, he wouldn’t come in the house when we had scaffolding put up because the anxiety of walking near it or under it that day his dad had to come out and carry him in.

This is just a few of the ways the kids anxiety has shown,

Maybe by talking and sharing these little signs it brings understanding to displayed behaviours for others who are not trained in anxiety disorders.

It is seeing and hearing what is going on around you in a heightened way and then forgetting everything after maybe it’s the Brian’s way of protecting itself .

That’s all for today

Have a beautiful evening

Much love

Faye xx

Emo the Emotional Elf update #author #christmas #elves #emotions #autism #anxiety #mentalhealth

Hi all, how are you all hope it has been a good day for you.

The other day I picked Niki up and we made a stop at a local shop, it was full of Christmas stock and elves, the things that gave me an inspiration to start the Emo diary in the very beginning of this publishing journey.

I must say it took a lot of ElF control not to walk out of the shop having purchased more, but it did start to give me that sentimental feeling again. The feeling that Christmas always brings to our home, this year a tough one as Niki is visiting her boyfriend and his parents.

She has been working so hard every day on learning Dutch I have been so impressed with her easy grasp of this new langue, excuse if I spelt that wrong .

Jake’s annual review for his EHCP is Thursday and tommorrow he has his physio and test on his ears. Maybe that’s why I have trouble sleeping tonight alot going round in my mind,

Maybe it’s the fear of them taking away something that is vital to him and his progressing in mainstream setting. I do like to share the progress my kids make even if it is small steps,

But I know that is because I caught hard for this support, the one thing that stopped us getting support in the first place was Jake’s academic scores because he was hitting and surpassing Maths and English. But then he didn’t have such intense anxiety or negative thinking, maybe it truly was the bullying that caused that train of thought, or maybe that is just his autism coming out , really hard to know I guess Thier is know right answer maybe a bit of both.

Niki is Enjoying college she has to have her ear defenders with her, but she has ways of taking herself out when she needs time.

My Aunties are still loving the new care home, and are settling in well.

There latest review is dealing with the more complexities of the Huntington’s and what stage of care they indevidually need, this is a blessing for our family it would be different if it were just the usual care support for us to have helped them at home, but they need medical monitoring and round the clock care so that is the reason they are in a home.

There are many things I am still unable to share about our journey and life but have my hands tied for now, it will all come out in the end when the time is right.

But for now this writing and sharing what I can all raises awareness which is a positive thing.

Jake made a cheese and onion flan today for everyone’s dinner, something he learned on his hospitality course he even are a small sliver no gives from the egg this time so that is a good thing.

He taught Hayley to rise his scooter after him and his dad made sure it was safe, he also made me but some flowers for our table ๐Ÿ˜€

Niki got to see a small plane at college

Any way for now I must go try to get some sleep ๐Ÿ˜€ have a beautiful day

All my love

Faye

Emo the Emotional Elf update #Author #Christmasbook #elves #emotions #autism #anxiety #mentalhealth #selfhelp

Hi all, today`s update.

So i had a catch up with publisher`s and the next round of their marketing begins soon we they bring out their christmas catalogue, which all along i knew this would be when the most work needed to be done because of it being a christmas book.

Blogging and keeping Emo the Emotional Elf out their since it was published in June was very important not only because i want it to sell but because it is all part of raising awareness and helping others along the way grow in confidence and talk speak up about mental health, autism and anxiety.

The book has not only added value to my family life but to my work life to, it has enhanced it by bringing something new to the them. Today was busy as Niki can`t travel on school bus anymore because they say she no longer fits criteria as the 2 days are classed as work experience as she is duel registered, i have to now take her the 30 minutes journey on a Thursday and Friday and pick her up, luckily my husband was around because Jake had his dentist appointment at the same time as i was picking Niki up. I really don`t think they understand how difficult it is 2 have more then one child with extra needs at schools 30 minutes journey apart.Jake was awesome at his appointment, me and my hubby were very proud.

Then tonight i am on a night shift, right now Hayley, Tom, holly and Ellie are sound a sleep. Emo the other elves came with me so did my Elf outfit which they found funny, lots of fun games and tome was hiding amongst the elves, Ellie and holly have now finished reading the book, and i gave them a challenge of typing a review as if they were in school, i even let them use my work laptop, Ellie showed me she could use Microsoft word and she had been learning it at school. Holly is only 7 so hasn`t learnt about book reviews yet so i just asked the questions i.e what was your favorite part? what was your favorite thing ? so her review is different to Ellie`s.

Tom loved the elves especially my elf hat and playing Hiding in the Elves, Jake got some new Sun Glasses from Emo and he looked super cool. So all in all the week is coming to an end on a positive note as far as school goes the only thing that has been difficult is the changes to lunch rule for Jake which meant he wouldn`t eat his lunch, had to send an email as he can`t go all day with no food not good for his health or his concentration levels, or his iron deficiency. Eating for Jake is still a huge issue, I have his annual EHCP coming up so this is something that i will be bringing up.

Here are some pictures from tonight,

Have a beautiful Weekend

Emo the Emotional Elf update #author #christmas #elves #emotions #autism #anxiety #mentalhealth

Hi all, hope your doing well today. So having seen the news today and how children are not getting help untill it reaches crisis point is so very upsetting,

I can say as a family when we got to some crisis points we still did not receive help from mental health team.

Infact we got doesn’t fitย  criteria for help this happened for years, Niki finally got seen and put and anxiety meds for a about a year and a half upped at every visit they asked lots of questions but really didn’t give any feed back other than I will see you in six months to which when turning up to appointments medicines were upped.

Niki didn’t engage much with them and was just moving around the room.

It wasn’t helpful at all for her and in a way I was glad when she came off the meds by then I started thinking how can I get her to start talking and opening up about the things she felt, so I did the unexpected and met her from the school bus dressed as bat girl, the look on her face and her scream of laughter., I hadn’t heard for so long. Just hit me I definatley didn’t think it would have the impact it did it was Halloween and something just said do it.

Maybe a sign or just a feeling in my gut an instinct to reconnect.

It worked so well that’s where the idea an inspiration struck me we carried on as normal with her engaging more choosing to spend more time with me and her brother and dad.

Then the end of November came and I went to town I saw Emo in a shop and just was struck to carry on the with the

Different style of engagement, then each day the Elf diary started, and the rest as they say is in the book.

A fun, quirky , book that will make you feel emotions hopefully.

But also a book for raising awareness for these very important issues and lack of services. How truly truamatising the experience is for many families desperately seeking help and understanding as to what is happening.

I hope it reaches other families it doesn’t say all of the things that happened to our family at all, that is maybe for another time maybe another book.ย  This is an extremely child friendly book doesn’t contain treatments or medical, that is why maybe it will stand out In the Crowd of many families writing about there journeys.

I wanted the book to bring back laughter and fun to our lives and throughout add the things my kids loved at the time of writing it.

Hope it is something others will read and understand it isn’t long deep complicated words as I want it to be for all ages and reading levels.

Something parents can use and read if they notice there children are struggling. A reconnection with kids to parents and parents to Thier children.

Many thanks

Have a beautiful night or day ๐Ÿ˜€๐Ÿ’—

Faye xx